My little boy has childhood dementia — I’m watching him fade away

Cody was diagnosed with Sanfilippo syndrome, at only three-years-old (Picture: Jam Press/@codys_fight)

‘I’m watching my child fade away every single day, and it’s enough to break a person,’ says Georgia Nonas, 29.

Georgia’s son, Cody, who she describes as a ‘loving little boy’ with ‘the most contagious smile’, was just three years old when he was diagnosed with Sanfilippo syndrome, often dubbed as childhood dementia.

The heartbreaking condition can cause developmental regression and a subsequent loss of skills, mimicking the disease found in older people.

Typically, children who have the condition are only expected to live until their late teens.

‘Children with Sanfilippo lose every skill they’ve learned,’ said Georgia. ‘Sadly, we are seeing this happen now.’

Cody first started experiencing health issues when he was just one.